Wednesday, October 19, 2016

Enabling the Disabled with Khidmat Card: Review of Health and Welfare Programs

Many countries in the world are making real progress on civil rights for people with disabilities, however in Pakistan the  situation is not very encouraging.  We are still at the crossroads for rescue and revival of our existing infrastructure. There are natural and environmental reasons for the increase in disabilities in our society, from terrorism to industrial and road accidents.  
This new year brought three very positive but overwhelming news stories regarding the Health and Social Welfare sectors in Pakistan; all three programmes, if followed and implemented well, can take us into the right direction especially at the welfare state level.
When  development and welfare is considered in Pakistan, Punjab is way ahead in its efforts compared to other provinces and regions. There have been a number of major health emergency situations in recent years which the Punjab administration has fought and responded to successfully.
New Programmes for Health & Welfare :
  • Disabled Stipend (Khidmat Card)
  • National Insurance
  • Rehab Centres in Punjab Districts
Fortunately, all the above-mentioned announcements are about health care and the welfare of the deprived Pakistani citizens, which the civil society welcomes and believes in the good intentions behind such social uplift initiatives; however, there are still a few lingering, crucial questions, concerns and suggestions regarding new and old programmes. These concerns are linked with previous campaigns for social uplift and new efforts can not bear fruit without taking inventory of past work.
Pakistan is  witnessing  an exploding population sinking  in poverty  and there seems to be an obvious void between health care and social welfare programmes.  All major campaigns for welfare and health care which the nation has experienced earlier have begun with good intentions and big budgets, however,  somewhere in-between, the programmes go off-track and become wholly ineffective.  
There should be a holistic approach for all welfare and local health programmes; one programme can not be effective in isolation.

Newly-announced Welfare Programmes

Pre- existing Health Programmes

Pre-existing Social Welfare Programmes

  1. Khidmat Card for  the disabled (Stipend) for 200,000 citizens.
  2. Rehab centres in districts  with Chal foundation and IRC
  3. National Health Insurance Programmes for families, who have less then Rs 200 daily income.
  1. Basic Health Unit
  2. District Hospital Net Work
  3. Polio Eradication Campaigns
  4. Lady Health Visitors
  5. Lady Health Worker
  1. Bait-ul-Mal
  2. Social Security
  3. Benazir Income Support
  4. Zakat & Usher
Suggestions, Concerns and Questions
  1. Concern:It is important to  review the stipend amount for “Khidmat Card “ and should only be finalised with relevant feedback, while keeping real costs of basic survival in mind.
  2. Suggestion: Approval of Khidmat Card applicants’ cases should be decided considering the severity of each individual applicant’s disability.
  3. Suggestion:The definition and classification of Disability should be set with our local conditions in mind and public feedback should play a significant part in the process.
  4. Suggestion: Disability-related services should be approved for the seriously and chronically- disabled on an urgent basis.
  5. Suggestion:Procurement process for citizens to access disability care, such as devices, crutches and therapies, should be clearly explained and this information should be easily accessible to the public-at-large (in bilingual/formats).
  6. QuestionIs there an overlapping of services being offered, like the “Khidmat card” National Insurance” and “Rehab centre” services? This information should be easier to understand; do applicants require one central form or approval number or do they need to submit multiple applications to get disability services and funds?
  7. Suggestion:The way the disabled currently access services or even prove their disabilities to the Social Security department is exhausting, and self-defeating. There has to be a better, more accountable process that reaches directly to the disabled population in-need, from the top-down.
  8. Suggestion: Basic Health Unit (BHU), Lady Health Visitors (LHV) and Lady Health Workers (LHW) programmes can be used for an early intervention system setup to minimise disabilities damage if they occur   at the time of birth (such as Cerebral Palsy, Down’s Syndrome, etc).
  9. Suggestion: District hospitals should be equipped and staffed better to provide services for their local populations.
  10. Concern: Business loans for Hospitals is not a good idea; this can trouble an industry that already is suffering from lack of transparency and poor services rendered to the general public.
  11. Suggestion: Government should make it mandatory for employers to get group insurance for all of their employees.
  12. Suggestion: Capacity Building: There is an an urgent need for a framework for capacity building in relevant fields, from education to creating jobs in  fields concerned with the disability sector. This can be accomplished by giving free scholarships to welfare professions like Physiotherapist, occupational, and vocational therapist and at the school-level, providing caregivers, and nurses’ training with guaranteed jobs to fill the space and need.
  13. Suggestion: At the next level,  “Ray Shumari” NADRA cards should have disability data updated to verify family members with special (disabled) needs and with chronic health care needs.

BISP or Khidmat Card:
If we plan to base the Khidmat Card on the Benazir Income Support Programme (BISP) assessment  basis (which is linked to the older Zakat & Usher programme), then we need to face the reality that goals set for BISP have yet to be met. There are massive instances of mishandling and fraud around this programme; the actual deserving citizens are still in despair.All these free services are not reaching the disenfranchised. It is unrealistic to expect better results with the same framework, same staff and departments in place.   
Disability Situation In Pakistan:
Rehabilitation and health care work is no longer a simple task; Pakistan faces numerous challenges from an on-going war,  to years of terrorism, disabling natural calamities and an increasing number of road accidents. We have an ever-increasing number of people with disability who can not perform their daily-living activities (DLA)  alone and are dependent on their family or friends for these basic needs.
Disability is Expensive! If the state can not  take up the tab, that instance of  individual disability can negatively affect the whole family, because a disabled child has more needs (financial, medical, and otherwise) compared to his healthier siblings.
If a child is disabled by birth, like in the case of Cerebral Palsy  or  developmentally delayed growth, his family needs to spend extra time and money to maintain his basic living, in the form of medicines, diapers to wheel chairs, medical and therapeutic services on a frequent basis. However,  all these needs require funds, a minimum basic amount to maintain a dignified living.  Most rural and urban  areas , representing  70% of the nation’s population, do not possess the knowledge or resources to cope with the challenges of sustainable disabled care.
To make these programmes, Khidmat Card, National Insurance and Rehab Centres, effective and productive, they need to be closely reviewed and monitored for maximum positive social impact.

Sunday, October 16, 2016

Cerebral Palsy and ASD Awareness Pakistan Campaign an Overview

World CP Day 2016 Pakistan
We at Step-Up Pakistan had a very busy and eventful year since we joined  hands with to spread awareness about CP in Pakistan. There were ideas,plans, diversions, and adjustments however we still feel  a sense of accomplishment  where we made an impact.At first it was just “getting your foot in the door ” kind of scenario if you talk about Cerebral Palsy and disability in Pakistan , but we kept at it, asking, sharing translating, explaining the need, and inviting curious minds to explore about disability and particularly  CP . As 99.9% schools are not inclusive in Pakistan, accessibility  is scarce, it needs imagination to create that empathy, we created small little educational videos, flashcards and empathy games to introduce kids and teachers about “what CP can look like, and how much acceptance and intervention is required, We are glad we made a way for sharing information about  CP cases for those are out of the loop.We are on social media, and reaching out to the people at the grassroots level, who can benefit most from our coordination for better services, rehab, and education.
There are things in the pipeline for coming year, we plan to expand our volunteer base nationwide,with an easy to replicate model of projects.
We are excited to see an overwhelming response for people who want to volunteer and like the opportunity to join this cause.
We thank  World CP Day.Org for creating this opportunity , tools and the encouragement we received.
Last few moths we realised the importance of Urdu translation for a better reach!

Help Them Help Humanity !